Joshua – Status Update

March 28, 2026

The initial report for Joshua was generally positive this morning. He was on 60% oxygen while wearing his mask. He had a quiet night and started the morning on 100% oxygen.

When I first saw Joshua, he was uncomfortable with the mask and the cough assist treatment he was going through. It is one of those necessary difficult experiences for Joshua. The whole process is tough with a machine forcing air into his lungs to make him cough, followed by a tube going into his mouth and throat to finish suctioning what is coming up. When the mask covers his face it rests on a sore spot on his nose. When the suction goes in his mouth and through it hits tender areas. That is what we saw first thing this morning.

Throughout our day with Joshua, he was stable, but very fatigued, which is part of not having all the oxygen going through his body that is necessary. He had enough oxygen in his system, but definitely no excess. By supper time he was settling down with a mask and oxygen coming in through his ventilator. The goal is for Joshua to continue as he is with the hope of being able to lower his dependence on oxygen, something that is happening much more slowly than I would prefer.